Saturday, March 3, 2012

Because there’s nothing more beautiful than the way the ocean refuses to stop kissing the shoreline, no matter how many times it’s sent away.
— Sarah Kay


Photo on 26-2-12 at 6.20 PM
Photo on 26-2-12 at 6.21 PM
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I was looking for Body Dysmorphic Disorder (BDD) videos and I chanced upon two other documentaries:

First was The Boy Whose Skin Fell Off on Jonny Kennedy, who was diagnosed with Epidermolysis Bullosa (EB). People with EB has extremely fragile skin, such that it would fall off at the slightest friction. Both parents must carry the defective gene for a child to be born with this condition. Kennedy died at the age of 36 due to terminal cancer.

The second one was on Ashley Kurpiel, who has a very rare disease called Fibrodysplasia Ossificans Progressiva (FOP). It is the ossification of fibrous tissues due to a mutation in the body's repair mechanism and causes the progressive loss of mobility. Basically, muscles turn to bone. An early misdiagnosis resulted in the amputation of her right arm. She is still alive.

Such strong souls. So terribly heartbreaking. So ashamed of myself. I have absolutely nothing to complain about.

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